Its just not fair

Yes i know my hair is a little fly away but today that’s how i feel.

I wish i could fly away from all the upset in my life and land on a private island – sounds appealing doesn’t it.

I hate that over the last few years my poor health has taken over with my bladder, my neurological condition and the will to just walk miles around the shopping centre – but I’m so thankful that a wheelchair still gives me independence.

My days are always controlled by when my body paralysis will hit, how bad and for how long.

I spoke to my Dad on the phone earlier. He has vascular dementia and it was not the conversation i wish i was having with him.

I wish i was saying lets go on an adventure like we used to Dad. It’s so damn sad.

Only last month i lost my big brother who had battled cancer twice and this time it took him. It always pains me when its always the best people it happens to and not the bad buggers locked up.

Illness affects everyone i know that but it truly sucks when it’s yourself and your family that seems to suffer so much.

Tomorrow will hopefully bring a better day and I’m probably just having a bit of a crappy one today.

Rememer it’s ok to not be ok

Til next time

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