Because illness has become a very big part of my life. I can’t just ignore the fact that life has changed for me big time. Before I would wake up and think what can I do today? Now I wake up and the first thing I think of, are my legs.
Since the last update I have been in hospital again. Luckily they let me home the next day, as my really good friend lent me a single bed and the occupational therapist gave us enough mobility aids to start a shop. So my bedroom is now in the living room.
My legs are in paralysis 90% of the time so they are pretty useless. So it’s from the bed to the wheelchair and then back to bed with the help of mum and a couple aids too.
It’s hard as hell, I tell you.
If you look back at my blog in July – talking about walking miles around the city before watching our musical, that was literally 2 months ago. Now I can barely walk a yard.
Most of the time I’m extremely positive, as I think it’s better than wallowing in something that can’t be helped. There is the odd day where all I do is cry. But hey I’m only human.
Until I have an appointment come through for the specialist I just have to plod on the best I can.
All this I couldn’t do without my wonderful mum and also the brilliant support of my friends too.
It’s 2 in the morning as I’m writing this I just can’t sleep. I find writing therapeutic so I thought why not do an update.