Category: Chronic illness

Exactly 2 months away

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I don’t know if I have mentioned in my health updates before but I have to go through another huge operation in exactly 2 months.

If you are a new reader in March of this year I had my bladder taken away. It was the bane of my life and was forever poorly with it. So I pee into a bag called a urostomy

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Due to a 9 and a half hour op to get my bladder unstuck from my bowel and womb saving them before removing the useless bladder, the blood supply wouldn’t stretch up enough (they use part of your bowel to make a stoma for your wee)…crazy but clever.

So I have a stoma lower down that causes me problems still so the operation in January is to take away some of my tummy and flatten it out. I don’t have much of a muffin top but it’ll help in the long run..then they will resite my urostomy.

I have been told that it could be anything from 2 weeks to 9 weeks stay in hospital and to be prepared to maybe have a poo bag ( colostomy/ileostomy) as they are messing about with the intestine and bowel.

All the poor health and I still smile and stay positive because it’s all I know what to do in bad times.

So just a little part of my health journey and a little reflection.

Happy Friday 🌸

Health update

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Thought it had been a while since I did one of these updates on my health. So here’s the rundown.

ANXIETY

My appears from nowhere, for no rhyme or reason at the moment.

I get a tight chest, my thoughts are all over the place, I feel lightheaded and think I’m going to faint. The anxiety relievers I use are a stress ball type thing if it’s within reach at the time or the apps I’ve downloaded on my phone especially for anxiety. I’ll let you know them in a later post.

If I’m near my bed I lie down and listen to music or a guided meditation. It does help alot at the time.

🦄

UROSTOMY

It was going swimmingly, no problems as such and then it started leaking. So bag changes were and still are a bit of a performance.

My kidneys seem to be doing overdrive, I have an ultrasound at the end of the month so I’ll know more about that then.

I have to have another major op on my skin and stoma in the next 4 months to sort the problems out.

I was iron deficient but from last test I’m OK but still gotta take these horrible tablets.

🦄

M.E

It’s not been too bad actually I do however find myself going off to bed early like half 7 at night some evenings.

My voice goes and my voice gets sore when my body thinks I’ve overdone it. Some days I feel exhausted even after 8 hours sleep. But I find a happy medium most of the time where I can have a nap if needs be or just a lie down.

🦄

FUNCTIONAL NEUROLOGICAL DISORDER

My mobility is very up and down, when my body cooperates its good when it doesn’t I have to either use my wheelchair all the time or go into hospital if it is a real bad episode. We have had our shower adapted, so showering is much easier. Before we had a tiny closed in cubicle now it’s a lovely big wet room.

Most days my body is aching. I use wheat bags or a hot water bottle as I find heat it a great healer.

I wish I could have someone on tap for massage because I find that relieves the aches too. I want a new matteress one that your body just molds into, but until I’ve had my op it’s on hold.

🦄

So there you are the life of a chronically ill peach.

But blogging keeps me going and writing is my passion so I won’t stop.

Thanks for stopping by

Til next time

FEATURE FRIDAY WEEK 3

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This is a mental health special of feature Friday. Read below these wonderful girls stories and why they love blogging

Helen from Helen loves

I hope the blog is a cosy, positive space, promoting wellbeing and self-reflection. I spent years letting anxiety and a lack of self-confidence get in the way of achieving my goals. Now, I’m all about finding tips and tricks to declutter your mind, create positive routines and boost confidence, so you can live the life you love.

HELENS BLOG helenloves.co.uk.

INSTAGRAM : www.instagram.com/_helenloves

TWITTER www.twitter.com/_helenloves

Nyxie from Nyxies Nook

I’m a mental health blogger who focuses on eating disorder recovery, depression, anxiety and general wellness of the self. The blog was started in March 2019 in a bid to raise awareness for mental illness such as Anorexia Nervosa and Anxiety, two such disorders I suffer from. However, what started out as a hobby, quickly turned into something much, much more!

Nyxie’s Nook has become a place to talk about all mental health issues and the struggles that come along with recovery. I cover a variety of subjects ranging from general wellness right up to more specific recovery-related content. I not only aim to cater to those in recovery but to people in all walks of life.

THE BLOG www.nyxiesnook.com

Twitter – twitter.com/nxyiesnook

FACEBOOK: www.facebook.com/nyxiesnook

INSTAGRAM :www.instagram.com/nyxtrix

PINTEREST www.pinterest.co.uk/nyxiesnook

Leo from The anxious teach two

My blog is all about my very honest journey of battling my Mental Health diagnosis of anxiety and depression. I talk openly about the ups and downs of MH. I now work as a MH advocate as well as working full time as a teacher.

BLOG theanxiousteachtwo.home.blog

INSTAGRAM Instagram.com/leoooooallen

TWITTER: Twitter.com/theanxiousteac2

Watch out for who I have next Friday

I am someone who…

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For old readers and new i thought this would be an easy read and since its baking hot today it’ll just be what comes to mind, as i love to blog and publish on the same day. like keeping it fresh…so here goes

I AM SOMEONE WHO

LOVES : Spending time with others who make me feel alive (happy, giggly and loved)

HATES : Backstabbers, gossips and fakery – they are just the worst

CANT: Go a day without eating either cheese or chocolate…oh or mayo

CAN: be there for those who need me and perk someone up when they are feeling down.

WILL NEVER: Give up when my illness is trying to irritate the hell out of me.

HAS: Been on a rough journey through life (bullying, sexual abuse, divorce of parents, lost my brother and chronic illness) and still i smile though it all.

CANT WAIT TO: Get my writing head back on and write and publish a book suitable for everyone – self help me thinks

HAS NEVER: Tried drugs, i mean each to their own but it doesn’t float my boat or appeal to me in any way.

WISHES: There was a cure for Cancer and Dementia as its two of the most cruelest diseases ever.

TRIED: To learn to drive but i had bad anxiety and just lost all confidence. Give me a road with nobody else driving on it and i’ll be fine.

USUALLY FORGETS: what i go upstairs for, then come back downstairs to then remember. so annoying.

WILL PROBABLY END UP: that old bird with a pink rinse and probably a perm.

IS THANKFUL FOR: all the thoughtful people i have in my life, the roof i have over my head and the things we all take for granted like our phones and laptops.

Anyway, there you have it, i guess you know me a little better than you did before.

Til next time

Straight out of the blue

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Imagine turbulents at sea and how you’d feel …

This is how my Dr has explained to me what labrynthitis is… I have inflammation of the inner ear that causes your balance to be very distorted. I can’t move my head and if I try to look about the room feels like it’s spinning. So I’m literally confined to my bed and my head in one position until it passes.

Let’s hope it’s not too long a feeling. I wouldn’t wish it on anyone 😣

My Surgery

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Most of my posts have been written in advance as I didn’t know how I was going to be feeling after my surgery. I usually write and publish my blog posts the same day but I had to think ahead.

So I thought I’d just write a short question and answer about my surgery and how I’m feeling

  1. What surgery did I have: I had my bladder removed it took 9 hours as they wanted to save my bowel and uterus as they were stuck together with adhesions.
  2. Did you have to have anything done to prep you for it: I had to drink these vile drinks for 2 days then alter my eating to softish food. It was a bit of a struggle but I did it.
  3. How long is recovery expected to be: some people are still recovering years later but I’ve been told I can’t lift anything heavier than a kettle for 6 months or more. My niece will just have to come cuddle up on the other side as she’s getting a lump at nearly 3 so I’m not up for doing myself damage.
  4. Are the staff nice: Overall they are all really nice and helpful and reassure me when I’m a bit scared
  5. What’s the hospital food like:to be honest because my appetite has gone a bit I’ve not ate very much at all. The food I have had is edible just not a variety that I see on the menu they bring round.
  6. What are you doing to pass the time: for the first couple of days / nearly a week I felt pretty rotten and been dosed up with painkillers. When I have been ok I’ve watched the TV they have in my room then the occasional Netflix film or YouTube video.
  7. Do you have to adapt to anything differently: yes plenty. I now have a bag stuck to my body that needs to be very well looked after and of course the stoma itself. It’ll all come with practise.
  8. A positive message for others facing surgery: keep a positive head, a strong mind will get you through anything.

Loving you is easy cos your beautiful

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I want you to really digest what I’m about to say.

We all have had those days when we really can’t stand to look at ourselves in the mirror, we don’t feel pretty in the slightest.

Do you know what?

We are human and having a down day is very normal.

But I want you to really think about the person that you are inside and out.

  • I want you to love all that you are, flaws and all. There’s not another you out there.
  • Take compliments on board, I know when I give someone a compliment I truly mean it and don’t just go round saying it for fun.
  • Have daily mantras that you can either say out loud or to yourself (for example yes I can) click here for a list of ones you can use
  • Give yourself a pep talk on the bad days and remind yourself you are good enough and you are worth it.
  • When you ooze self confidence you will feel a sense of happiness in life and your wellbeing will totally alter. Going from self conscious to self confidence will take time but you will feel the benefits of it.

Don’t ever doubt your worth, and don’t let anybody tell you you are anything less than fabulous.

In Minnie Ripertons words as I have titled this blog post- loving you is easy cos you’re beautiful.

Thanks for stopping by

Til next time