Mental health awareness

Since its Mental health awareness day today I thought I’d share a few quotes which I think could be quite helpful or relatable.

Never be afraid to let your guard down, take off that brave face and open up and talk. Never suffer alone.

Things insensitive people say on the outside that really doesn’t help you or your mental health. Concentrate on the inside and those who want to understand the issues you’re facing.

Please know that you can’t simply be strong everyday, it’s just impossible. Even the strongest have bad days.

Go on the day the best you can and seek nobody else’s approval.

Please remember to take care of number one… Which is you ♥️

Health update

Thought it had been a while since I did one of these updates on my health. So here’s the rundown.

ANXIETY

My appears from nowhere, for no rhyme or reason at the moment.

I get a tight chest, my thoughts are all over the place, I feel lightheaded and think I’m going to faint. The anxiety relievers I use are a stress ball type thing if it’s within reach at the time or the apps I’ve downloaded on my phone especially for anxiety. I’ll let you know them in a later post.

If I’m near my bed I lie down and listen to music or a guided meditation. It does help alot at the time.

🦄

UROSTOMY

It was going swimmingly, no problems as such and then it started leaking. So bag changes were and still are a bit of a performance.

My kidneys seem to be doing overdrive, I have an ultrasound at the end of the month so I’ll know more about that then.

I have to have another major op on my skin and stoma in the next 4 months to sort the problems out.

I was iron deficient but from last test I’m OK but still gotta take these horrible tablets.

🦄

M.E

It’s not been too bad actually I do however find myself going off to bed early like half 7 at night some evenings.

My voice goes and my voice gets sore when my body thinks I’ve overdone it. Some days I feel exhausted even after 8 hours sleep. But I find a happy medium most of the time where I can have a nap if needs be or just a lie down.

🦄

FUNCTIONAL NEUROLOGICAL DISORDER

My mobility is very up and down, when my body cooperates its good when it doesn’t I have to either use my wheelchair all the time or go into hospital if it is a real bad episode. We have had our shower adapted, so showering is much easier. Before we had a tiny closed in cubicle now it’s a lovely big wet room.

Most days my body is aching. I use wheat bags or a hot water bottle as I find heat it a great healer.

I wish I could have someone on tap for massage because I find that relieves the aches too. I want a new matteress one that your body just molds into, but until I’ve had my op it’s on hold.

🦄

So there you are the life of a chronically ill peach.

But blogging keeps me going and writing is my passion so I won’t stop.

Thanks for stopping by

Til next time

Day in the life…

I say day in the life, this isn’t a typical day it’s what happened today.

I had to get up super early as we are having our ensuite made into a wet room so I can manoeuvre about a bit as our shower was tiny and when my mobility is crap it wasn’t very practical. So the work men have been in since Monday.

Mum had to wash my hair over the sink in the kitchen this morning, luckily it’s short and doesn’t take too long.

Then mid morning I had to go have some blood tests as after the op I had they need to do it every 3-4 months to keep an eye. I’m also getting tested for diabetes as I’ve not been feeling full par of late and a few symptoms of type 2 are what I’m experiencing. I’ll let you know what that outcome is.

So naughty I know but mum treated me and her to a chippy lunch. We normally have one naughty day and that was today. It was really yummy.

My anxiety and chronic fatigue has been playing up lately so I took myself up to my room this afternoon and just led on top of my bed and tried to zone out… Bit hard with the banging from the work men but it’ll be worth all the noise.

Still wearing this smile at the end of the day.

Gonna say nighty night and I hope you all have had a great day.

Til next time

Be brave, be bold, be you

Today I braved a bare face and then thought I’d put my new bikini on and show my urostomy bag too.

OK its only just peeping over the top but I felt confident and thought I’d take the opportunity while it was there.

I want to also say: Embrace your beauty flaws and all. You only have one body so appreciate it very very much inside and out 😘

Sorry its only a short and sweet post.

Til next time

Straight out of the blue

Imagine turbulents at sea and how you’d feel …

This is how my Dr has explained to me what labrynthitis is… I have inflammation of the inner ear that causes your balance to be very distorted. I can’t move my head and if I try to look about the room feels like it’s spinning. So I’m literally confined to my bed and my head in one position until it passes.

Let’s hope it’s not too long a feeling. I wouldn’t wish it on anyone 😣

My Surgery

Most of my posts have been written in advance as I didn’t know how I was going to be feeling after my surgery. I usually write and publish my blog posts the same day but I had to think ahead.

So I thought I’d just write a short question and answer about my surgery and how I’m feeling

  1. What surgery did I have: I had my bladder removed it took 9 hours as they wanted to save my bowel and uterus as they were stuck together with adhesions.
  2. Did you have to have anything done to prep you for it: I had to drink these vile drinks for 2 days then alter my eating to softish food. It was a bit of a struggle but I did it.
  3. How long is recovery expected to be: some people are still recovering years later but I’ve been told I can’t lift anything heavier than a kettle for 6 months or more. My niece will just have to come cuddle up on the other side as she’s getting a lump at nearly 3 so I’m not up for doing myself damage.
  4. Are the staff nice: Overall they are all really nice and helpful and reassure me when I’m a bit scared
  5. What’s the hospital food like:to be honest because my appetite has gone a bit I’ve not ate very much at all. The food I have had is edible just not a variety that I see on the menu they bring round.
  6. What are you doing to pass the time: for the first couple of days / nearly a week I felt pretty rotten and been dosed up with painkillers. When I have been ok I’ve watched the TV they have in my room then the occasional Netflix film or YouTube video.
  7. Do you have to adapt to anything differently: yes plenty. I now have a bag stuck to my body that needs to be very well looked after and of course the stoma itself. It’ll all come with practise.
  8. A positive message for others facing surgery: keep a positive head, a strong mind will get you through anything.

Prepping for my operation

I say I am not scared but deep down I’m bricking it.

So on Friday I had to go to hospital to get ‘marked up ‘ which means they get a permanent marker and draw on where they think my stoma will go to and how high I wear my trousers so this is what my tummy looks like at the mo.

On Saturday I had to have my last substantial meal but also 3 of these build up drinks called fortisips. Luckily I like the 2 flavours they gave me – Apricot and vanilla. I must say it was hard drinking them as they are like a milkshake but fill you up a lot more.

I tried to distract myself from thinking too much about it and watched a bit of eye candy on the TV – Micky Flanagan. I know he’s not your typical hunk but there’s just something about him 😍

Today’s Sunday and I’ve got to seriously get sorted because tomorrow is the day.

I have to make sure all is packed in my bag the essentials and mum said she can bring things up at a later date when I’m feeling a bit more human. I have to stop eating properly at 2pm and can have jelly and ice cream til midnight if I am hungry. The dreaded drinks I have another 6 to drink today and then 2 Monday in the morning before surgery.

I’m going to enjoy a nice soak in the shower as I dunno when I’ll be able to have my next one. I bought Bohemian Rhapsody on DVD so that’ll be tonight’s viewing before I attempt to get a bit of shut eye before my 5am wake up call.

I’ve got some scheduled blog posts for 2 weeks so I hope you’ll enjoy them.